Marrowforums
Thu Jul 8, 2010, 01:23 PM
Marrowforums is pleased to announce expanded descriptions of aplastic anemia, MDS, and PNH that can help you learn more about these bone marrow failure diseases: what's happening to your body, disease terminology, how the disease is identified and classified, treatment choices, and how to help yourself.
Disease information pages:
Aplastic Anemia
MDS - Myelodysplastic Syndromes
PNH - Paroxysmal Nocturnal Hemoglobinuria
These pages cover the following topics:
Aplastic Anemia
Symptoms of Aplastic Anemia
Causes and Risk Factors
Diagnosis of Aplastic Anemia
The Mechanism of Aplastic Anemia
Types of Aplastic Anemia
Treatment of Aplastic Anemia
Clinical Trials
Coping with Aplastic Anemia
Myelodysplastic Syndromes
Symptoms of MDS
Causes and Risk Factors
Diagnosis of MDS
The Mechanism of MDS
Classification of MDS (see also our MDS Classification Tool)
Treatment of MDS
Clinical Trials
Coping with MDS
Paroxysmal Nocturnal Hemoglobinuria
Symptoms of PNH
Causes and Risk Factors
Diagnosis of PNH
The Mechanism of PNH
Treatment of PNH
Clinical Trials
Coping with PNH
As patients and caregivers we may find it hard to understand a complicated and serious disease, one we may never have heard of before diagnosis, and the medical lingo we're hearing. Educating ourselves takes time and effort but it's very worthwhile. The more we learn, the better we are able to be full partners with the doctors on our medical teams, and to advocate for the best possible care. We encourage you to take advantage of these and other information resources, including the free educational materials (https://www.aamds.org/aplastic/disease_information/educational_material/) available from the Aplastic Anemia & MDS International Foundation (AA&MDSIF).
Disease information pages:
Aplastic Anemia
MDS - Myelodysplastic Syndromes
PNH - Paroxysmal Nocturnal Hemoglobinuria
These pages cover the following topics:
Aplastic Anemia
Symptoms of Aplastic Anemia
Causes and Risk Factors
Diagnosis of Aplastic Anemia
The Mechanism of Aplastic Anemia
Types of Aplastic Anemia
Treatment of Aplastic Anemia
Clinical Trials
Coping with Aplastic Anemia
Myelodysplastic Syndromes
Symptoms of MDS
Causes and Risk Factors
Diagnosis of MDS
The Mechanism of MDS
Classification of MDS (see also our MDS Classification Tool)
Treatment of MDS
Clinical Trials
Coping with MDS
Paroxysmal Nocturnal Hemoglobinuria
Symptoms of PNH
Causes and Risk Factors
Diagnosis of PNH
The Mechanism of PNH
Treatment of PNH
Clinical Trials
Coping with PNH
As patients and caregivers we may find it hard to understand a complicated and serious disease, one we may never have heard of before diagnosis, and the medical lingo we're hearing. Educating ourselves takes time and effort but it's very worthwhile. The more we learn, the better we are able to be full partners with the doctors on our medical teams, and to advocate for the best possible care. We encourage you to take advantage of these and other information resources, including the free educational materials (https://www.aamds.org/aplastic/disease_information/educational_material/) available from the Aplastic Anemia & MDS International Foundation (AA&MDSIF).