Darvocet

[lindajo]

The FDA has recommended that all darvocet propoxyphene products be removed from the U.S. market. I have successfully used it for pain since 1996.
What are the rest of you using for pain. I specifically get deep bone pain. Any suggestions?

[Susan L]

Hi - I get deep bone pain also and use Loratab for it. Does seem to work. Are you currently on treatment? :)

[lindajo]

I am not currently doing treatment with any drugs. It has been a year and a half since my last transfusion. I tried Procrit and it didn't help. I am on supportive therapy only. Transfusions and antibiotics as needed. I take one Darvocet morning and evening. I hope I find something I can tolerate as well.

[Susan L]

I am not currently doing treatment with any drugs. It has been a year and a half since my last transfusion. I tried Procrit and it didn't help. I am on supportive therapy only. Transfusions and antibiotics as needed. I take one Darvocet morning and evening. I hope I find something I can tolerate as well.

Hi - I would ask your doctor for the Loratab. I take one in the morning and it gets me thru the day. Take care.

[lindajo]

Thanks for the suggestion. She prescribed tramadol 50 mg tablet. I will try it and see what happens.

[cheri]

It is my understanding that these drugs are for long term use...does anyone know of anything, other than aspirin, or ibuprofen, that would work for sporadic muscle aches/pains? Tylenol and Vicoden has been of no use.
I am on Vidaza treatment, and Bactrim but no other meds...

My upper arms and shoulders have been very painful for the last week...I seem to feel like it's a flare up of some sort...today was a little better. I have never suffered from any type of arthritis or chronic pain, and it's not like a sprain or strain...both arms are affected. Thanks!

[Susan L]

It is my understanding that these drugs are for long term use...does anyone know of anything, other than aspirin, or ibuprofen, that would work for sporadic muscle aches/pains? Tylenol and Vicoden has been of no use.
I am on Vidaza treatment, and Bactrim but no other meds...

My upper arms and shoulders have been very painful for the last week...I seem to feel like it's a flare up of some sort...today was a little better. I have never suffered from any type of arthritis or chronic pain, and it's not like a sprain or strain...both arms are affected. Thanks!

The only thing working for me is 1/2 loratab. I have tried everything. Hope someone lets us know something. I have a new symptom too - I woke up during the night two days now with both wrists hurting - bad. Hope everyone has a great holiday!!!

[cheri]

Hmmmm.....your wrists make me wonder if there is some connection with the joint pain & Vidaza.....we will have to keep track of these aches and pains!
Rheumatiz? (I sound like an old lady!) I don't even know what that is!
I am trying to avoid taking pain meds on a daily basis....be well all, and enjoy the holiday! :)

[Chirley]

Just a thought.

I also get joint and muscle pain and was on Vidaza for 5 cycles.

Recent blood tests showed that I had a severe Vitamin D deficiency and was told that I'm at very great risk of having a pathological fracture. As I have a well rounded diet and live in Queensland (State motto used to be "The Sunny State") I can't think of any reason why I should be D deficient. My only thought was that the Vidaza might prevent absorption.

As I said before, it's just a thought.


Chirley

[mausmish]

I was discovered, by my family doctor, to have a severe vitamin d deficiency before I started Vidaza and was given a prescription for a weekly therapeutic dose. When I mentioned it to my oncologist, she said that most Americans are vitamin d deficient but just don't realize because they never get it tested. She didn't seem too concerned. Not long after that, my 18-year-old niece was also diagnosed as being severely vitamin d deficient, about half the suggested minimum level.

[launch]

You have to be careful, because, Tylenol can mask fever symptoms and guess what??? Darvocet has Tylenol in it. So, that should not be a choice for an MDS patient... seems something else can be found. My husband was prescribed Oxycodone 5mg for mild pain. When he had really bad pain, they went to a much stronger pain killer called Dialadid, but, that was when his paid very so very intolerable and he was transitioning from MDS to AML.

I've heard of Tramadol. It's non-narcotic, but, is a pain blocker. Good luck!
Cindy