VIDAZA-suppression

[slip up 2]

Does anyone have any info on Vidaza suppression....thanks again

[Birgitta-A]

Hi slip up 2,
I am not sure what you mean when you write Vidaza suppression. Do you mean how often Vidaza decreases the counts due to bone marrow supression? Here is a report about adverse reactions. You will find counts at page 8:
http://www.vidaza.com/pdf/PI_FINAL.pdf
Kind regards
Birgitta-A

[Birgitta-A]

Sorry! Here is the link: http://www.vidaza.com/pdf/PI_FINAL.pdf
Birgitta-A

[slip up 2]

Thanks Brigitta...read all of that on our Vidaza site...my husbands counts are falling...the last BM is great and he will start on EPO today....he feels good but has had the need for RBX....he just started his 9th set of Vidaza....I just wonder if I am looking for answers that are not there...
thanks again

[LJacobs]

Hi slip up 2,

My dad is 78 years old and has biphenotypic (two kinds of leukemia at the same time) AML. He's had 5 cycles of Vidaza so far and is still experiencing low counts. His wbc is hovering around 1.0, his hematocrit is around 26 (he needs transfusions every two or three weeks) and his platelets tend to clump but have been in the 10,000 range or lower for a couple of months. He's gotten as low as 3,000 and 5,000. He receives platelets every three weeks or so. Because his platelets tend to clump and be uncountable, the medical team relies on him noticing extra petechia, bruising, bleeding gums, or nose. He is feeling fatigued but not terrible. He naps every day, walks about 1/2 hour, and does a lot of reading.
In my dad's case, we are just hoping to keep things at bay for as long as we can. We're feeling pretty good about the Vidaza at least holding him somewhat steady, even if it is a very LOW count steady.

I hope your husband continues to do well, even if he needs transfusions. Glad to hear his BM is good!
Lesley Jacobs in Seattle

[Birgitta-A]

Hi slip up 2,
Good that your husband's BMB is great after Vidaza treatment :)! Hopefully EPO will increase the HGB. How old is your husband? Have you thought of a SCT?
Kind regards
Birgitta-A

[slip up 2]

Hi Birgitta....he is in his 60's and he thought about it, but has said no, if the partial one was available maybe....I know we had asked his Dr. when he was 1st diagnosed thinking it would be a how can I say, an easy procedure, that was 2 years ago, what one learns in 2 years...

[Birgitta-A]

Hi slip up 2,
Yes, to get a SCT or not is a very complicated question. It is not an easy procedure at all.
Kind regards
Birgitta-A