Dapsone and Aplastic Anemia

[dfantle]

After reading Surfergirls post from Friday, I began to wonder if anyone else on the site who has AA, MDS or PNH, recalls taking Dapsone before their symptoms first appeared.

I was on Dapsone for a few weeks after my autologous stem cell transplant to prevent PCP (type of pneumonia). This was just weeks prior to my first AA symptoms so I now wonder if this may be the cause of my AA..

Please share if you experienced this as well...

[Marlene]

John was on dapsone too. 3X/week only. But I don't think it impacted his BM. However, as our doc said, all antibiotics suppress BM to a degree. And John was on another new one which later showed to cause AA also. So, I have to wonder if that is why he never fully recovered his counts and it's taken a very long time to get to where he's at now.

We will never know.

[NLJabbari]

Almost immediately after ATG treatment, my son Yashar was put on Bactrim to prevent PCP. After learning that it too could cause AA; I asked his doctor about this. I told him I was very uncomfortable w/this new detail I had learned and I wanted him off this med. He then scheduled Yashar for monthly Pentamidine breathing treatments to prevent PCP. It seemed that after removing the Bactrim, Yashar's counts began to rise...

[aplasticgirl]

After reading Surfergirls post from Friday, I began to wonder if anyone else on the site who has AA, MDS or PNH, recalls taking Dapsone before their symptoms first appeared.

I was on Dapsone for a few weeks after my autologous stem cell transplant to prevent PCP (type of pneumonia). This was just weeks prior to my first AA symptoms so I now wonder if this may be the cause of my AA..

Please share if you experienced this as well...

I have been on Dapsone for 13 years and never had any trouble. My counts still are continuing to slowly rise.