maybe jumping the gun

[billyb]

Ill start with my wife has stage 4 breast cancer..we were in a trial and were kicked out because of blood counts ( wbc 1.6 / rbc 3.2 / platlet 41% ) they have been this way for about 6 weeks onc called us in and said it looks like she has leukemia because she has blasts 8% our marrow biopsy hasent returned yet she says we can do chemo for breast but not sure of chemo for marrow yet because chemo may have caused leukemia so we have to get with the marrow doctor every thing i read about seems to point to MDS does anyone know what i should exspect or what questions i should ask the doc...i try not to goggle stuff because it is confusing and you read stuff you dont like to hear.....i just want to be better informed

[cathybee1]

First of all, I'm so sorry about your wife's cancer, that she was kicked out of the trial and now you're facing this uncertainty about what else is going on.

If, after the bone marrow biopsy results come back and there is a diagnosis of MDS, you will want to know what is the classification/subtype -- that will drive the treatment options offered by your wife's doctors.

Here is a list of other questions you might consider

http://www.cancer.net/cancer-types/myelodysplastic-syndromes-mds/questions-ask-doctor

I hope you get the bone marrow results back soon. The waiting is awful.

[Neil Cuadra]

billyb,

You can get trustworthy information from the Aplastic Anemia & MDS International Foundation. Start here (http://www.aamds.org/patients/newly-diagnosed). You can get printed material from their free information package or watch the introductory presentations in their Online Learning Center.

[billyb]

Thanks Neil I downloaded some other info also....guess i wait til Friday...when we get bone marrow results back to dig deeper....will keep ya'll posted

[billyb]

Sorry..... you also Cathy...I hit the button to fast

[billyb]

Received bone marrow rusults....therapy related acute myloid leukeima...waiting on some sort of cromeozone [ don't think I spelled it right ] test to come back....something about her DNA could have changed

[cathybee1]

It's not the news you hoped for, but AML is like MDS -- there are different subtypes with different prognoses. The chromosome report will let the doctors figure out what subtype they're dealing with. While I know little about AML, I do know that with MDS one of the most important things for a good outcome is to find a specialist. I expect the same is true for AML. I am praying for your wife and also pray that you find good doctors to help you through your journey.

[Lori Patrick]

My daughter (age 28) has stage 4 metastatic breast cancer. She underwent the chemo and radiation last year and taked herceptin and tamoxefin. Lately she has had bruising and I am concerned that she may have leukemia or something in that arena. Keep us informed and I will put you and your wife in my prayers.

[billyb]

Lori my wife had no symptoms for leukemia...but the bloodwork keep droping and i suggested a bone marrow bioapsy..watch her counts keep track of her anc number..age dosent matter my wife is 36 (diagnosed with breasr cancer at 31) Our prayers are with ya'll

[billyb]

Karyotype...46, XX,t(8;21)(q22;q22)(5)/47,sl,+8(2)/46,sl,-X,+mar(3)/45,sl,der(12;15)(q10;q10)(9)