Started on Exjade today

[Glenda H]

At my visit to my haematologist on Tuesday he wanted me to go on Exjade. My ferritin level isn't that high but he has started me on a low dosage until I see him again.
I've been taking powdered wheat grass daily ever since my first transfusion so hope this will help a little as well. I've been reading about milk thistle on this forum. I'm taking a supplement called Product B from Isagenix and milk thistle is the main ingredient.

Fortunately here Exjade is on the PBS so most of the cost is covered.

[Birgitta-A]

Hi Glenda,
Hope you will have a positive effect when you take Exjade and that your kidneys will tolerate the drug! Good that you started with a low dose. I could only take 500 mg/day though I should have been on 1250 mg according to my weigh because my WBC decreased.
Kind regards
Birgitta-A

[riccd2001]

I've been taking Exjade for about four years and I have to keep a close eye on Creatinine levels because one of its side effects is to push up beyond my "normal" level. When that happens, I stop for about three weeks and confirm the Creatinine level has come down. My doc and I came to an agreement that keeping the serum ferritin around 1000ug/L works OK for me. :cool: