Information & link for Gluten Summit

[Mseth]

I read in previous threads that some forum members have benefitted from being on a gluten free diet. In case anyone is interested here is a link to an online event "The Gluten Summit", which is a series of interviews with the world’s leading experts on gluten-related disorders, health and nutrition that will be broadcast online from November 11-17, 2013.
Event site: http://theglutensummit.com

My mother has tested negative for celiac, but she has symtoms of gluten sensitivity - weak digestion etc for the longest time. I have not yet been able to convince her to try a month of going gluten-free to see if there is any benefit. Wheat is pretty much her staple diet. Is there any other way of knowing if she has any adverse reaction to gluten?

[Marlene]

Thanks for posting this. This looks to be a very informative summit. And it's free.

[Whizbang]

Mseth,

It's not that hard to go Gluten free, you just need to buy her the alternative...

Rice flour tortilla's... Rice and beans... Rice Krispies... Gluten Free Granola mixes and cereals, Flavored oatmeal, Etc...

They even make gluten free Pizza (which generally does suck)...

Health is always more important than eating choices...

[Mseth]

Health is always more important than eating choices...

Whizbang, Yes ofcourse health is more important. In India, wheat is staple food, almost every major meal of the day, but dropping it is not impossible when the incentive could be improved counts.

I have been following your progress on another thread and must say you are extremely brave. Best wishes to you, you are doing excellent, keep up the strength!!

[gramous]

hello,

I'm a 34 woman and eat gluten free since 6 years without problem. Your can find a lot of alternative food. my boyfriend eats also without gluten since 3 months and try benefices from this diet without bad effects for his mds but a lot of improvement for his intestinal status... so I think that gluten free diet is the diet fort omorrow :-)

[Mseth]

Thanks for responding.

Your signature line shows increase in Hemo from 8,9 to 12. Is that the possible effect of gluten free diet? Is there some other treatment which helped?

[Whizbang]

Mseth,

For me, 1000mcg Folic acid daily, Stress B complex, Vitamin D3 (2500iu) in droplets every other day (for Platelets), and Gluten free diet helped me tremendously over a short period of time...

But you have to realize I am young (45) and completely healthy otherwise...

Component Standard Range 6/14 6/19 7/18 7/30
RDW-CV 11.6-14.4 % 18.1 18.1 16.1 15.1
RDW-SD 35.1-43.9 fl 59.1 58.1 51.5 48.1
HGB 13.7-17.5 g/dl 8.0 9.1 11.0 11.0
HCT 40-51 % 23.3 26.0 31.7 32.4
PLT 150-400 K/ul 70 76 95 91
RBC 4.63-6.08 M/uL 2.57 2.91 3.56 3.64
WBC 4.2-9.1 k/ul 2.0 1.9 3.2 3.5
NEUT% 34-68 % 46 48 53 62
NEUT 1.8-9.0 K/uL 1.0 0.9 1.7 2.2

This was from diagnosis to before my first round of chemo dacogen...

Everyone is obviously different, because it worked for me doesn't necessarily mean it will work for your mom...

Best of luck to you and your mom, and may God bless you both...

[Marlene]

I was able to listen to a couple of these. Well worth the time. It's surprising how many things gluten intolerance/celiac disease impacts. Just because you don't have any digestive complaints does not mean you don't have problems with wheat or gluten. Many doctors wait until there's a solid pathology before they will diagnose a gluten/wheat issues but there's support to intervene early on to prevent problems.

It can take 2 -3 three months for the antibodies created to return to normal baseline levels after going gluten free.