Marrowforums
Fri Mar 6, 2015, 10:42 AM
A free one-day patient conference will be held in Cleveland, OH on Saturday, May 2, 2015. The conference, hosted by the Aplastic Anemia & MDS International Foundation (http://www.aamds.org/) (AA&MDSIF), is one of six one-day patient conferences in 2015.
This will be a multi-track conference for AA, MDS, and PNH patients and their families.
The conference will include parallel (simultaneous) sessions on AA, MDS, and PNH, transplants, sessions to help you live with and cope with these diseases, and professionally-facilitated support sessions with your peers.
Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight.
Conference Program
Come hear about the latest information about diagnosis, treatment (including transplants), and medical research from leading experts, including these physicians:
Dr. Sergio Giralt, Memorial Sloan Kettering Cancer Center
Dr. Jack Goldberg, Penn Presbyterian Hospital
Dr. David Margolis, Children's Hospital of Wisconsin
Dr. Michael Parsons, Cleveland Clinic
Dr. Mikkael Sekeres, Cleveland Clinic
Dr. Doug Smith, John Hopkins University
Patients and family members will also be able to
meet medical experts face-to-face
hear about the latest treatments and medical research
learn skills for managing life with a bone marrow failure disease
have your questions answered
learn how to be your own advocate for the best care
get to know other patients and family members like yourselves
attend professionally-facilitated support sessions
A special lunch program will let conference attendees meet and talk, with an emphasis on ways to stand up for your health.
Diagnosis, Treatment, and Managing the New Normal - Patient and Family Conference
When:
Saturday, May 2, 2015, from 8:30am to 5:00pm
Check-in begins at 7:30am.
Where:
Cleveland Airport Marriott (http://www.marriott.com/hotels/travel/cleap-cleveland-airport-marriott/) (Google map (https://www.google.com/maps/place/Cleveland+Airport+Marriott/@41.437561,-81.7994095,14z/data=!4m2!3m1!1s0x8830edc812fc37b5:0xfde1363c539b0bb5))
4277 West 150th Street, Cleveland, OH 44135
216-252-5333 (main), 800-228-9290 (toll-free reservations)
Discounted hotel rates are available through Thursday April 9, 2015.
You can make hotel reservations by phoning or by using the Online Hotel Reservation Page (http://www.marriott.com/meeting-event-hotels/group-corporate-travel/groupCorp.mi?resLinkData=Aplastic%20Anemia%20%26%20MDS%20with%20Comp%20Parking%5ECLEAP%60APAAPAA%601 09.00%60USD%60false%604/27/15%605/6/15%604/9/15&app=resvlink&stop_mobi=yes).
Hotel parking is $8/day.
See other hotel information (https://friendraising.donorpro.com/campaigns/101/403) on the AA&MDSIF event page.
Registration:
Use the online Conference Registration Form (https://friendraising.donorpro.com/campaigns/101/register) to register for the conference.
The registration deadline is Thursday April 9, 2015.
For more information see the AA&MDSIF event page (https://friendraising.donorpro.com/campaigns/101).
If you plan to attend this conference, post in this thread to let other attendees know to look for you!
After the conference, let us know what you thought of the event.
This will be a multi-track conference for AA, MDS, and PNH patients and their families.
The conference will include parallel (simultaneous) sessions on AA, MDS, and PNH, transplants, sessions to help you live with and cope with these diseases, and professionally-facilitated support sessions with your peers.
Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight.
Conference Program
Come hear about the latest information about diagnosis, treatment (including transplants), and medical research from leading experts, including these physicians:
Dr. Sergio Giralt, Memorial Sloan Kettering Cancer Center
Dr. Jack Goldberg, Penn Presbyterian Hospital
Dr. David Margolis, Children's Hospital of Wisconsin
Dr. Michael Parsons, Cleveland Clinic
Dr. Mikkael Sekeres, Cleveland Clinic
Dr. Doug Smith, John Hopkins University
Patients and family members will also be able to
meet medical experts face-to-face
hear about the latest treatments and medical research
learn skills for managing life with a bone marrow failure disease
have your questions answered
learn how to be your own advocate for the best care
get to know other patients and family members like yourselves
attend professionally-facilitated support sessions
A special lunch program will let conference attendees meet and talk, with an emphasis on ways to stand up for your health.
Diagnosis, Treatment, and Managing the New Normal - Patient and Family Conference
When:
Saturday, May 2, 2015, from 8:30am to 5:00pm
Check-in begins at 7:30am.
Where:
Cleveland Airport Marriott (http://www.marriott.com/hotels/travel/cleap-cleveland-airport-marriott/) (Google map (https://www.google.com/maps/place/Cleveland+Airport+Marriott/@41.437561,-81.7994095,14z/data=!4m2!3m1!1s0x8830edc812fc37b5:0xfde1363c539b0bb5))
4277 West 150th Street, Cleveland, OH 44135
216-252-5333 (main), 800-228-9290 (toll-free reservations)
Discounted hotel rates are available through Thursday April 9, 2015.
You can make hotel reservations by phoning or by using the Online Hotel Reservation Page (http://www.marriott.com/meeting-event-hotels/group-corporate-travel/groupCorp.mi?resLinkData=Aplastic%20Anemia%20%26%20MDS%20with%20Comp%20Parking%5ECLEAP%60APAAPAA%601 09.00%60USD%60false%604/27/15%605/6/15%604/9/15&app=resvlink&stop_mobi=yes).
Hotel parking is $8/day.
See other hotel information (https://friendraising.donorpro.com/campaigns/101/403) on the AA&MDSIF event page.
Registration:
Use the online Conference Registration Form (https://friendraising.donorpro.com/campaigns/101/register) to register for the conference.
The registration deadline is Thursday April 9, 2015.
For more information see the AA&MDSIF event page (https://friendraising.donorpro.com/campaigns/101).
If you plan to attend this conference, post in this thread to let other attendees know to look for you!
After the conference, let us know what you thought of the event.