Marrowforums
Sat Jan 28, 2017, 10:54 AM
A free one-day patient conference will be held in Orlando, FL on Saturday, November 4, 2017. The conference, hosted by the Aplastic Anemia & MDS International Foundation (http://www.aamds.org/) (AA&MDSIF), is one of six one-day patient conferences in 2017.
The conference is for AA, MDS, and PNH patients and their families, for people who want information about the related diseases of AML, CMML, MPNs, PRCA, and GVHD, and for medical professionals who care for these patients.
The conference will include parallel (simultaneous) sessions on AA/PRCA, MDS/AML/CMML/MPNs, and PNH, as well as sessions on transplants, genetics, and wellness issues, and professionally-facilitated support sessions with your peers.
Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight. There will a Friday Night Social the evening before the conference.
Conference Program
Come hear the latest information about diagnosis, treatment, and medical research from leading experts, including these physicians:
Dr. Randy Brown, University of Florida Gainesville
MDS speaker to be announced
PNH speaker to be announced
Patients and family members will also be able to
meet medical experts face-to-face
hear about the latest treatments and medical research
learn skills for managing life with a bone marrow failure disease
have your questions answered
learn how to be your own advocate for the best care
get to know other patients and family members like yourselves
attend professionally-facilitated support sessions
AA&MDSIF Patient and Family Conference: Living with Aplastic Anemia, MDS, or PNH
When:
Saturday, November 4, 2017, 8:30am to 3:30pm
Check-in begins at 8:00am.
Where:
Rosen Shingle Creek (http://www.rosenshinglecreek.com) (Google map (https://www.google.com/maps/place/Rosen+Shingle+Creek/@28.4256865,-81.443304,15z/data=!4m5!3m4!1s0x88e77e0cc65a19a7:0x4d324d6cffd94d76!8m2!3d28.4256818!4d-81.4345439))
9939 Universal Blvd., Orlando, FL 32819
407-996-6338 (main)
Hotel reservations:
Discounted hotel rates are available through Thursday, October 12, 2017.
Phone: 866-996-9939 or 866-996-6338 (mention "AA&MDSIF Patient Family Conference")
Online Hotel Reservations (https://gc.synxis.com/rez.aspx?tps=fml&arrive=2017-10-31&adult=1&step=1&hotel=69867&shell=ORLRS&chain=10237&template=ORLRS&avcurrency=USD&group=GRPAAMDSIF2017)
Hotel self-parking is $9. The hotel does not provide an airport shuttle.
See other hotel information (https://friendraising.donorpro.com/campaigns/366/1415) on the AA&MDSIF event page.
Conference registration:
Use the online Conference Registration Form (https://friendraising.donorpro.com/campaigns/366/register) to register for the conference.
For more information see the AA&MDSIF event page (https://friendraising.donorpro.com/campaigns/366).
If you plan to attend this conference, post in this thread to let other attendees know to look for you!
After the conference, let us know what you thought of the event.
The conference is for AA, MDS, and PNH patients and their families, for people who want information about the related diseases of AML, CMML, MPNs, PRCA, and GVHD, and for medical professionals who care for these patients.
The conference will include parallel (simultaneous) sessions on AA/PRCA, MDS/AML/CMML/MPNs, and PNH, as well as sessions on transplants, genetics, and wellness issues, and professionally-facilitated support sessions with your peers.
Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight. There will a Friday Night Social the evening before the conference.
Conference Program
Come hear the latest information about diagnosis, treatment, and medical research from leading experts, including these physicians:
Dr. Randy Brown, University of Florida Gainesville
MDS speaker to be announced
PNH speaker to be announced
Patients and family members will also be able to
meet medical experts face-to-face
hear about the latest treatments and medical research
learn skills for managing life with a bone marrow failure disease
have your questions answered
learn how to be your own advocate for the best care
get to know other patients and family members like yourselves
attend professionally-facilitated support sessions
AA&MDSIF Patient and Family Conference: Living with Aplastic Anemia, MDS, or PNH
When:
Saturday, November 4, 2017, 8:30am to 3:30pm
Check-in begins at 8:00am.
Where:
Rosen Shingle Creek (http://www.rosenshinglecreek.com) (Google map (https://www.google.com/maps/place/Rosen+Shingle+Creek/@28.4256865,-81.443304,15z/data=!4m5!3m4!1s0x88e77e0cc65a19a7:0x4d324d6cffd94d76!8m2!3d28.4256818!4d-81.4345439))
9939 Universal Blvd., Orlando, FL 32819
407-996-6338 (main)
Hotel reservations:
Discounted hotel rates are available through Thursday, October 12, 2017.
Phone: 866-996-9939 or 866-996-6338 (mention "AA&MDSIF Patient Family Conference")
Online Hotel Reservations (https://gc.synxis.com/rez.aspx?tps=fml&arrive=2017-10-31&adult=1&step=1&hotel=69867&shell=ORLRS&chain=10237&template=ORLRS&avcurrency=USD&group=GRPAAMDSIF2017)
Hotel self-parking is $9. The hotel does not provide an airport shuttle.
See other hotel information (https://friendraising.donorpro.com/campaigns/366/1415) on the AA&MDSIF event page.
Conference registration:
Use the online Conference Registration Form (https://friendraising.donorpro.com/campaigns/366/register) to register for the conference.
For more information see the AA&MDSIF event page (https://friendraising.donorpro.com/campaigns/366).
If you plan to attend this conference, post in this thread to let other attendees know to look for you!
After the conference, let us know what you thought of the event.