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rar
Sat Jul 1, 2017, 05:33 PM
Today marks my 3rd re-birthday. the good news is all my numbers are in range or very close. The transplant took and I have no tests that would indicate MDS. My oncologist says he is always happy to see me because I am among the best living examples of a success story.

I still have mild to moderate GVH of eyes, mouth, throat, scalp. While annoying I have no problem living with them or taking the 31 pills I take every day.

My more serious side effect of the transplant is the adrenal failure that was most likely from the mega doses of prednisone that I ingested. It leaves me felling dizzy for half the day and a blood pressure that swings wildly from 65 to 215. Doctors are trying to control with little success. Statistics say that without a transplant I would be pushing up daisies now. So I take what I can get, no regrets.

Hopeful
Sat Jul 1, 2017, 08:32 PM
Happy Re-Birthday, rar :)

Neil Cuadra
Sun Jul 2, 2017, 12:40 AM
Congratulations on the 3-year mark, Ray.

Nobody wants to be on steroids any longer than they have to, as you well know. I hope they figure out how to keep your endocrine levels in balance.

bailie
Sun Jul 2, 2017, 02:11 PM
Congratulations!! I am so proud of your effort. I wish you many more of these birthdays.

Cheryl C
Sun Jul 2, 2017, 09:45 PM
Congratulations, rar. Well done! I love your positive attitude in spite of your health not being perfect.

DanL
Tue Jul 4, 2017, 05:53 PM
Congratulations! Three years without relapse is a great accomplishment. As Bailie said, here's to many more!

GoodDay5150
Wed Jul 5, 2017, 01:11 PM
Hi Ray, congrats on 3 yrs! I had my 5 in December for PNH. I still have some fairly mild GVHD, but it seems to be slowly going away. I feel abt 1000% times better than I did for a VERY long time when I had PNH but tried to ignore the systems until I couldn't ignore them any longer! We all wish you continued success in your recovery.

Mario

GoodDay5150
Wed Jul 5, 2017, 03:21 PM
Hi Ray, congrats on 3 yrs! I had my 5 in December for PNH. I still have some fairly mild GVHD, but it seems to be slowly going away. I feel abt 1000% times better than I did for a VERY long time when I had PNH but tried to ignore the systems until I couldn't ignore them any longer! We all wish you continued success in your recovery.

Mario