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View Full Version : AA&MDSIF to Hold Seven Patient Conferences in 2018


Marrowforums
Thu Dec 28, 2017, 08:40 PM
The Aplastic Anemia & MDS International Foundation (http://www.aamds.org/) (AA&MDSIF) will hold seven one-day conferences for bone marrow failure disease patients and their families in 2018, in seven cities across the U.S.

Conference attendance will be free. Those who want to stay overnight can take advantage of discounted hotel rates. Plan to attend the patient conference closest to you.


2018 Patient and Family Conferences (click a link for conference details)
Rockville, Maryland - Saturday, March 24, 2018


Houston, Texas - Saturday, April 21, 2018


Indianapolis, Indiana - Saturday, May 19, 2018


Seattle, Washington - Saturday, June 23, 2018


Providence, Rhode Island - Saturday, September 22, 2018


Los Angeles, California - Saturday, October 13, 2018


Miami, Florida - Saturday, November 10, 2018 (in conjunction with the MDS Foundation (https://www.mds-foundation.org))


Agenda

Each conference will include parallel (simultaneous) sessions on bone marrow failure diseases.
AA (aplastic anemia) and PRCA (pure red cell aplasia)
MDS (myelodysplastic syndromes), CMML (chronic myelomonocytic leukemia), and MPNs (myeloproliferative neoplasms)
PNH (paroxysmal nocturnal hemoglobinuria)
AML (acute myeloid leukemia)

There will also be sessions on bone marrow transplants and general wellness. These sessions will help you learn about the diseases, learn to live with and cope with them, and take charge of your own health.

At each conference patients and family members will be able to
meet medical experts face-to-face
hear about the latest treatments and medical research
learn skills for managing life with a bone marrow failure disease
have your questions answered
learn how to be your own advocate for the best care
get to know other patients and family members like yourselves
learn how the AA&MDSIF can help you
attend a Friday night social before the day of the conference


Click the links above for details about each conference. To be notified of news or changes, subscribe to this forum thread or the individual conference threads. You can also find information on the AA&MDSIF Patient Conferences (http://www.aamds.org/education/conferences/patients) page.

Marrowforums
Thu Dec 28, 2017, 09:03 PM
Registration is now open for the Patient and Family Conference in Rockville, Maryland (Saturday, March 24, 2018).

Click the link in the first post above for details.

Marrowforums
Thu Jan 25, 2018, 12:27 AM
Full conference information is now available for the Patient and Family Conference in Houston, Texas (Saturday, April 21, 2018).

Registration is open.

Click the link in the first post above for details.

Yuk
Mon Jul 23, 2018, 12:25 AM
I greatly appreciate it and look forward to joining you guys in Rhode Island on Sep 22! :)