Anyone out there in WI or IL?

[Shiloh]

I just found out I have PNH and I am so unsure of what the next steps are. I am being told I don't need any treatments by one Dr but I am going to see another one in another week. I am unsure if I should go to Chicago for a specialist or northern WI. Any ideas?:confused:

[Neil Cuadra]

I think that getting additional opinions is a good idea, so you are on the right track.

According to the PNH Support Group (http://pnhdisease.org/) website, Drs. Andrew Artz, Joseph Baron, and Christopher Daugherty at the University of Chicago (http://www.uchospitals.edu/) have experience treating PNH. I suggest contacting them.

You are about the same distance from the University of Wisconsin (http://www.cancer.wisc.edu/uwccc/index.asp) and the Medical College of Wisconsni (http://www.mcw.edu/) as you are from Chicago. You could contact those centers as well to ask if they have PNH specialists on staff. For a rare disease like PNH it's important to find physicians who understand and have treated the disease.