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View Full Version : In it together


Susan
Tue Aug 15, 2006, 02:07 AM
What a great idea! Just as the AAMDS Patient Conference connects all of us with bone marrow failure diseases, so does this site. These are all related and sometimes overlapping conditions so we should be sharing stories and thoughts. Of course I will stay with the PNHdisease site too, as we are sooo rare and get lonely for others who understand that very stange disease.;)
Susan Todd