Cheri,

It does sound like a little caution is in order. Were I in your shoes, I'd certainly be thinking hard about a little watching a waiting. But everyone is different and you have to do what's best for you.

Keep us posted!

Greg

Thanks....my gut feelings are kicking in and they have gotten me this far....nobody is going to bully me at this stage of the game!

Some good input here (thanks tytd) and I am giving my brain the day off....but will listen to what my CBC and Dr S has to say tomorrow and then let you all know.....

This is such a wonderful sounding/thinking board that I can't thank you all enough....it really helps me, when truthfully, I am skeptical that the medical profession has MY best interests at heart...they are, and have to, going to treat the masses as a whole, otherwise, no one would benefit........it's just that I tend to follow atypical patterns, and always have! Watching and waiting seems right for me as well....if I miss out on this, then it is meant to be. At least I know I have a healthy heart and lungs!

And as I mentioned, completely overwhelmed, I put in it God's hands-- and it seems he sent me a message, loud and clear! This, from someone, who once questioned her beliefs....NO MORE!!! The power of prayer is unbelievable....I should tell some stories in another forum....

More later!

Hi Cheri,
For what it's worth I think you're on the right track as well. No more so than believing that God has sent you a loud and clear message and that you're putting it all in His Hands - because that's where it is anyway.
Keep the faith and God Bless,
Sally

The decision has been made to postpone the TPA clinical trial....Based on the following, I couldn't see adding more to the mix at the moment....but the folks at CINJ were wonderful and said I could try it again if I ever needed or wanted to....

My last CBC was WBC 2; Hg 9.5, Platelets 52!!!!
These are all up from the previous CBC, 3 days before, and the first rise in all 3 numbers in well over a year. This time last year I was just beginning Vidaza! And this is the first time I haven't needed a platelet transfusion in over a month.....Interesting to learn that having a bacterial or viral infection can influence the # of blasts in your bone marrow....which once again, makes the numbers game a bit sketchy....

I'm a little superstitious about writing this....I hope it's a trend and not a fluke! I feel so lucky and thankful and hopeful for anyone who is battling this crazy disease---that you just never know and cannot give up!!!! I'm having a hard time though, shutting off my racing thoughts....

I feel great and my gut tells me to "watch and wait" for a while.....and letting my body react and adjust to being left alone....
I'm feeling very lucky--Not only was I able to attend my nieces Nursing School graduation (which I would have been in the hospital and missed) but since I didn't need a transfusion, went to the racetrack yesterday, and after losing all day, not only won back my losses but won another $80 on the LAST race! Seems a little prophetic, huh?

Thank you for letting me share my happy news and I wish some good news for all of you....

One word Cheri.......... AWESOME!!!..............

ALL the best! Stay on this path.........

God Speed!

Paula

Higher counts
 

Wonderful Cheri :)!
Kind regards
Birgitta-A

Feeling great is the kind of news we all hope for. Thank you for sharing these last speed bumps and potholes of the journey with us -

Way to go!

Deb

Just to update:

Today's CBC WBC 1.6
Hgb 9.
Platelets 50K! :D
Seems like #'s are holding pretty well, and hoping for some more rising soon....
Every day is an adventure!

Such great news, Cheri. Thanks for sharing with us. Your perseverance and positive attitude are an inspiration.

Wow platelets 50k!:D
Congrats cheri!
May your counts continue its upward trend!

Here we go again!
 

It's like deja vu, all over again.....;)

Low grade fever, 99's, low 100's, low counts.....
(Clinical trial didn't happen as updated in another post......)

I believe I've had a bout of diverticulitis.....spastic colon.....ugh.....

Yesterday, my platelets were 19k...not one sign of bruising! Normally I would see little bleeds all over....WBC .05; hgb 8.5
I wonder if when your body is fighting something, it skews all of your blood numbers. Or how about meds? I am on Cipro, Flagyl, Bentyl, Exjade....
Other than feeling tired, and indigestion, I feel ok.

I am seeing the Dr today and will bombard him with my usual 20 questions.......

I don't feel as panicky as I did last time, as I recovered from those #'s. I met a lady whose Hgb gets as low as 5 and she doesn't even feel it.
This machine, the human body, can take quite the stressors.
I'll update you all after my platelet transfusion later today!!!!!