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-   -   AA&MDSIF to Hold Seven Patient Conferences in 2018 (http://forums.marrowforums.org/showthread.php?t=5887)

Marrowforums Thu Dec 28, 2017 08:40 PM

AA&MDSIF to Hold Seven Patient Conferences in 2018
 
The Aplastic Anemia & MDS International Foundation (AA&MDSIF) will hold seven one-day conferences for bone marrow failure disease patients and their families in 2018, in seven cities across the U.S.

Conference attendance will be free. Those who want to stay overnight can take advantage of discounted hotel rates. Plan to attend the patient conference closest to you.


2018 Patient and Family Conferences (click a link for conference details)
  1. Rockville, Maryland - Saturday, March 24, 2018

  2. Houston, Texas - Saturday, April 21, 2018

  3. Indianapolis, Indiana - Saturday, May 19, 2018

  4. Seattle, Washington - Saturday, June 23, 2018

  5. Providence, Rhode Island - Saturday, September 22, 2018

  6. Los Angeles, California - Saturday, October 13, 2018

  7. Miami, Florida - Saturday, November 10, 2018 (in conjunction with the MDS Foundation)

Agenda

Each conference will include parallel (simultaneous) sessions on bone marrow failure diseases.
  • AA (aplastic anemia) and PRCA (pure red cell aplasia)
  • MDS (myelodysplastic syndromes), CMML (chronic myelomonocytic leukemia), and MPNs (myeloproliferative neoplasms)
  • PNH (paroxysmal nocturnal hemoglobinuria)
  • AML (acute myeloid leukemia)
There will also be sessions on bone marrow transplants and general wellness. These sessions will help you learn about the diseases, learn to live with and cope with them, and take charge of your own health.

At each conference patients and family members will be able to
  • meet medical experts face-to-face
  • hear about the latest treatments and medical research
  • learn skills for managing life with a bone marrow failure disease
  • have your questions answered
  • learn how to be your own advocate for the best care
  • get to know other patients and family members like yourselves
  • learn how the AA&MDSIF can help you
  • attend a Friday night social before the day of the conference

Click the links above for details about each conference. To be notified of news or changes, subscribe to this forum thread or the individual conference threads. You can also find information on the AA&MDSIF Patient Conferences page.

Marrowforums Thu Dec 28, 2017 09:03 PM

Registration is now open for the Patient and Family Conference in Rockville, Maryland (Saturday, March 24, 2018).

Click the link in the first post above for details.

Marrowforums Thu Jan 25, 2018 12:27 AM

Full conference information is now available for the Patient and Family Conference in Houston, Texas (Saturday, April 21, 2018).

Registration is open.

Click the link in the first post above for details.

Yuk Mon Jul 23, 2018 12:25 AM

Thank you!
 
I greatly appreciate it and look forward to joining you guys in Rhode Island on Sep 22! :)


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