Marrowforums

Marrowforums (http://forums.marrowforums.org/index.php)
-   PNH (http://forums.marrowforums.org/forumdisplay.php?f=8)
-   -   No NORD PNH Meetings In 2018 (http://forums.marrowforums.org/showthread.php?t=6076)

GoodDay5150 Thu May 24, 2018 11:11 AM

No NORD PNH Meetings In 2018
 
I have been informed by a rarediseases.org representative that NORD is not hosting any PNH meetings in 2018. She did direct me to

http://www.aamds.org/education/conferences

Any new PNH patients out there? I don't remember if I posted this before, but I was informed last year that my donor was interested in communicating with me, but so far I have not heard anything from them. I will be sure to pass anything along if I ever do.

Hope all is well for those of us impacted by PNH



Mario


All times are GMT -4. The time now is 05:30 PM.

Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org