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-   -   Whites still going down (http://forums.marrowforums.org/showthread.php?t=6396)

shadowii Mon Aug 5, 2019 04:46 PM

Whites still going down
 
Welp his red is still stable by white stem cells went down again.
So for the first time he got a transfusion (white blood cells)
The doctor says that with haplo (since this is no longer haplo cord) the bone marrow can be sluggish in kicking in and that there is no cancer in his bone marrow.
On the other hand I don't know guys, he's getting the port taken out tomorrow and I wonder if that's jumping the gun.
Be straight with me what does this sound like to you guys.

DanL Mon Aug 5, 2019 08:42 PM

Taking out the port sounds like an unusual move just because ports are so much easier to access blood work and do infusions, etc. But the sluggishness of a haplo transplant getting to full production seems consistent with what I think I know. I can tell you that i am 5 years out and still don't consistently have normal wbc and platelets on a regular basis. I do have chronic gvhd which is the normal scapegoat.

I usually fall in line with ask lots of questions, but trust thead my hat it is not in a doctor's interest to mislead or lie to a patient and their family. This move is probably an overall neutral sign, especially since there aren't any mds cells present

Also, I had my ports removed to reduce infection risk. Merging was a tri fusion.

shadowii Mon Sep 16, 2019 06:17 PM

welp his six month biopsy is Monday
his rbc and platlets are going up but wbc is still going down, not sure what that means

shadowii Thu Sep 26, 2019 06:06 PM

Welp the good news Is that he still has no cll or mds, bad news is his counts keep going down so they are going to do a lot of different things but cant deny the possibility that he might need a second transplant.

They say its not graft failure but the stem cells just aren't producing like they should.

It is so weird that he's not relapsing but we are having this problem.


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