Global MD Anderson Score
 

During my most recent visit with my doc he mentioned the IPSS and the IPSS-R scores are only valid at the time of diagnosis. He uses the MD Anderson Global Score. The details of it are in the URLs below.

I made an Excel Spreadsheet that will calculate the score by simply choosing the values (from drop down menus) that are representative of your situation.

The Zubrod score can be determined from the following:

The Eastern Cooperative Oncology Group (ECOG) score (published by Oken et al. in 1982), also called the WHO or Zubrod score (after C. Gordon Zubrod), runs from 0 to 5, with 0 denoting perfect health and 5 death:[2] Its advantage over the Karnofsky scale lies in its simplicity.
0 – Asymptomatic (Fully active, able to carry on all predisease activities without restriction)
1 – Symptomatic but completely ambulatory (Restricted in physically strenuous activity but ambulatory and able to carry out work of a light or sedentary nature. For example, light housework, office work)
2 – Symptomatic, <50% in bed during the day (Ambulatory and capable of all self care but unable to carry out any work activities. Up and about more than 50% of waking hours)
3 – Symptomatic, >50% in bed, but not bedbound (Capable of only limited self-care, confined to bed or chair 50% or more of waking hours)
4 – Bedbound (Completely disabled. Cannot carry on any self-care. Totally confined to bed or chair)
5 – Death


If you notice any mistakes I have made, please let me know. Hope this helps.

Cheers

Data

http://www.mdanderson.org/publicatio...-advances.html

http://www.mdanderson.org/newsroom/n...f-disease.html

Interesting. I would have rated a 0 even though I was very sick. I was golfing and walking the 6.5 miles of hills of the course right up until the week of my transplant. I showed no symptoms and was "fully active".

Bailie,
Are you referring to rating a zero on the Zubrod score? I think being asymptomatic is fairly common.

Best of luck

Data

Yes (Zubrod score), I was in the high risk group of every other scoring available. It is why I was started on Vidaza immediately upon diagnosis and then lenalidomide (Revlimid) before stem cell transplant. The Zubrod scoring can be very misleading with MDS as you note. I have concluded (from personal accounts) that the later a person realizes that MDS/AML is a problem, the worse the outcome.