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-   -   Evan MacNeil's Personal Profile (http://forums.marrowforums.org/showthread.php?t=2526)

evansmom Fri Nov 18, 2011 10:02 AM

Evan MacNeil's Personal Profile
 
Hi everyone,

My son Evan was diagnosed with severe aplastic anemia weeks after his 10th birthday in October 2007. Evan is a healthy strong 14 year old today.

You can read Evan's story from ATG through BMT and onto recovery here.

If you have any questions or comments, feel free to post them here in this thread, as I continue to check in often at Marrowforums, in the hopes that I may be of support to others along the way.

Best wishes,

Nicole

Birgitta-A Fri Nov 18, 2011 01:11 PM

Evan
 
Hi Evan and his family,
Thank you for a wonderful story! You are all so brave :).
Kind regards
Birgitta-A

cathybee1 Sun Nov 20, 2011 03:29 AM

This is a heartbreaking and inspiring account of a terrifying journey. Thank you for mentally reliving those times to bring this to us. I am so glad that Evan is doing well now.

evansmom Tue Nov 22, 2011 09:21 PM

Thank you Birgitta and Catherine for your kind words!

mommy2eee Mon Dec 15, 2014 06:12 PM

Please help!
 
Hello
I just stumbled upon this page and I greatly appreciate you sharing your story! I am really hoping you can help me...we are also from Ontario and at McMaster hospital. They are looking at Aplastic Anemic for my DD who is 8 years old! This has been a week and a half and I am just spinning!
I am hoping to connect with you since you have gone through everything!
I am having trouble private messaging you.
My email is childerhose (at) hotmail.com
Thank you!
Melissa

GoodDay5150 Mon Jun 1, 2015 03:51 PM

Hi Nicole, thank you for your story abt your son. Positive outcomes need to be told, esp when a young child has a very bad disease such as AA. I was diagsd in April 2011 w/ PNH and I had a mostly succ BMT in Dec 2011. I have some mild GVHD, but my post-BMT experience has been fairly easy. Mainly just dr's appts. I had abt the best match poss and my donor is still unknown, so it's great to hear that your son has some info abt his donor or has been able to meet them. Good luck in the future.
Mario


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