Life after vidaza
 

I went to Stanford University for a second opinion when it appeared vidaza had run its course with me. They told me about a new drug on the market only approved by the FDA November 2017 called venetoclax. Look it up. I've been on it (it's a pill) for a month now, together with infusions of dacogen, and my blasts have gone from 51 per cent to 3!. It's a constant battle with nausea but Zofran helps, and remission is possible. Wish me luck. So far so good.

Hi AliceKay,
I have been wondering about you! I see you got your Christmas Miracle. So much for a month to live. Great! to hear from you.
All the best,
Sally

That's wonderful news! So happy for you :) Praying for your new treatment.

Thanks for sharing your amazing news! Wishing you the best!

AliceKay that's wonderful news. I hope your remission continues!

Venetoclax
 

Glad to hear your news! Are you part of a clinical trial at Stanford?

Wow, what a response to that drug! Good job, AliceKay! You give hope to others. I recently heard about that drug for AML. Keep it up!
Margaret

Hi Alice

Have you got an update on jow you are going. I may be starting tomorrow.

Thanks

Honey

Alice Kay,
I don't mean to hijack your thread but I'm so glad that Honeybun posted on your thread. Honey, if you go back to where Alice Kay posted, I think in Dec. on a different thread, she was given one month to live. I posted then that the doctors aren't God, they just try to heal and they give their opinions. I told her to believe in Christmas Miracles. When I saw the prognosis your doctors gave you, the first person who came to mind was Alice Kay.
All the best to you and Alice Kay.
Sally