Happy re-birthday to me
 

Today marks my 3rd re-birthday. the good news is all my numbers are in range or very close. The transplant took and I have no tests that would indicate MDS. My oncologist says he is always happy to see me because I am among the best living examples of a success story.

I still have mild to moderate GVH of eyes, mouth, throat, scalp. While annoying I have no problem living with them or taking the 31 pills I take every day.

My more serious side effect of the transplant is the adrenal failure that was most likely from the mega doses of prednisone that I ingested. It leaves me felling dizzy for half the day and a blood pressure that swings wildly from 65 to 215. Doctors are trying to control with little success. Statistics say that without a transplant I would be pushing up daisies now. So I take what I can get, no regrets.

Happy Re-Birthday, rar :)

Congratulations on the 3-year mark, Ray.

Nobody wants to be on steroids any longer than they have to, as you well know. I hope they figure out how to keep your endocrine levels in balance.

Congratulations!! I am so proud of your effort. I wish you many more of these birthdays.

Congratulations, rar. Well done! I love your positive attitude in spite of your health not being perfect.

Congratulations! Three years without relapse is a great accomplishment. As Bailie said, here's to many more!

Hi Ray, congrats on 3 yrs! I had my 5 in December for PNH. I still have some fairly mild GVHD, but it seems to be slowly going away. I feel abt 1000% times better than I did for a VERY long time when I had PNH but tried to ignore the systems until I couldn't ignore them any longer! We all wish you continued success in your recovery.

Mario

Hi Ray, congrats on 3 yrs! I had my 5 in December for PNH. I still have some fairly mild GVHD, but it seems to be slowly going away. I feel abt 1000% times better than I did for a VERY long time when I had PNH but tried to ignore the systems until I couldn't ignore them any longer! We all wish you continued success in your recovery.

Mario