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Marrowforums Fri Jul 24, 2015 12:12 AM

Tenth Annual Walk for PNH: September 20, 2015
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The Tenth Annual Walk for PNH, a fundraising and awareness event in support of people with paroxysmal nocturnal hemoglobinuria (PNH), will take place on Sunday, September 20, 2015 at Riverside Park in New York City.

The event is organized by the PNH Research and Support Foundation and benefits the Aplastic Anemia & MDS International Foundation (AA&MDSIF), the largest international organization supporting patients with PNH and other bone marrow failure diseases.

Participants of all ages and abilities are welcome to join the walk and the fight against PNH.

Sunday September 20, 2015
10:00-11:00am: Registration and Check-in
11:00am - noon: Welcome Ceremony and Walk
Noon - 1:30pm: Lunch and Meet and Greet
Riverside Park (Google map)
79th Street and Riverside Drive
Walk Information:
You can walk, sponsor a walker, form a team, join a team, be an off-site walker (not attending), or send in a donation.

See the event page and registration page for details.

If you plan to attend the Walk for PNH, post in this thread to let other attendees know to look for you!

After the Walk, let us know what you thought of the event.

Marrowforums Thu Sep 3, 2015 04:52 PM

Breakfast with the Experts
You're invited to Breakfast with the Experts - a free breakfast and visit with PNH experts, at the West 79th Street Boat Basin Cafe preceding the Walk for PNH.

Our experts:
  • Dr. Elizabeth Griffiths, Roswell Park Cancer Institute
  • Dr. David Araten, New York University
The breakfast will take place from 7:30am to 10:00am.
West 79th Street Boat Basin Cafe
West 79th Street and the Hudson River
New York, NY 10024
7:30am to 8:30am: mix and mingle with the experts
8:30am to 10:00am: presentations
10:00am: head over to the Walk for PNH
Please RSVP by email to Angie Onofre, or phone her at 301-279-7202 x112 if you would like to attend the breakfast.

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