Marrowforums

Marrowforums (http://forums.marrowforums.org/index.php)
-   AA (http://forums.marrowforums.org/forumdisplay.php?f=6)
-   -   NIH Trial - Plt Count Level Feedback/Experience (http://forums.marrowforums.org/showthread.php?t=5764)

disco3md Tue Jun 27, 2017 11:16 AM

NIH Trial - Plt Count Level Feedback/Experience
 
My wife was is currently in 6 month trial @ NIH. She's starting taking both Eltrombopag & Cyclosporine , and was taken off Eltrombopag and now taking only Cyclosporine. She is entering 5 month of trial, concern is her platelet count has been dropping over the 4 months ( 138, 120,11 & 99 most recently). NIH does not seem concerned. She may have a cold or virus.
Question - Has anyone had similar experience ? Does platelet count drop near the end of the trial? Appreciate any feedback

jef dk Wed Jun 28, 2017 01:08 PM

No responce to Eltrombopaq
 
Hi
I was initially treated with ATG plus Eltrombopag & Cyclosporine, but was taken of Eltrombopag because it gave kidney failure. It is not quite similar to what your wife has experienced, but I had no positive effect of Eltrombopag. My platelets were very low to a start and grew first after I was taken of Eltrombopag, and it has taken more than a year to get close to 100 x 10exp9
Kind regards Jef


All times are GMT -4. The time now is 04:46 AM.

Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org