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-   -   How to find patients in your area (http://forums.marrowforums.org/showthread.php?t=719)

Marrowforums Tue Aug 12, 2008 11:33 AM

How to find patients in your area
 
Marrowforums has added a new forum: Your Local Area

If you would like to find other patients in the area where you live, or the area where you are receiving treatment, check the Your Local Area forum for a thread matching your location.

If you don't see a thread for your area, you can start your own thread there by clicking the New Thread button in that forum, or click this link.

The thread title should identify your city, state, province, region, or country, e.g.,
  • Houston
  • North Carolina
  • Saskatchewan
  • Upstate New York
  • Portugal

Once you identify someone in your area, the next step is to get in touch with them. To make contact, it is not necessary to post your phone number or email address in the forums, and better for your privacy if you don't. Instead, we recommend that you use a Private Message or email.

See the Frequently-Asked Questions Member-to-member Communications page for instructions on sending Private Messages and email to other Marrowforums members.

Marrowforums Tue Aug 12, 2008 11:34 AM

Other ways to find patients
 
Since aplastic anemia, MDS, and PNH are rare diseases, other patients in your area may also be "rare." That's one of the reasons for Marrowforums, which lets patients connect online. Still, finding other patients in your geographic region can provide an additional avenue of support.

In addition to browsing, searching, or posting in the Marrowforums Your Local Area forum, you can:
  • Ask your local hospital or treatment center about local support groups or upcoming lectures or meetings. You might also work with them to start a local support group.
  • Take advantage of the AA&MDSIF Peer Support Network, or join the network as a volunteer.
  • In Canada, contact the AAMAC about local support groups, regional meetings, or peer-to-peer support.
  • Attend an AA&MDSIF Patient and Family Conference.
  • Contact organizations listed on our Resources page.
  • Join and participate in other forum systems.
  • If you are considering or facing a bone marrow or stem cell transplant, take advantage of the BMT InfoNet Patient-to-Survivor program or the National Bone Marrow Transplant Link Peer Support on Call program.


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