12 Years Post Transplant For Pnh
 

It appears that this forum has very few active patients or caregivers, but obviously there are a few of us left. Other than having to take Jakafi for chronic GVHD, I am fortunate to have very few other transplant related issues. I still have regular visits w/ the same specialist who has been treating me since being diagnosed in 2011. I know who my unrelated donor is, but I have never received a reply to my email sent a long time ago.
Here in Colorado, there are still some occasional news stories regarding Covid, but I have never contracted it. I still meet the occasional person w/ their Covid stories. May we never return to the Covid years! Happy holidays to all and good luck to any rare or non-rare blood disease patients who visit this forum.


Mario

Thanks for posting an update on your health. Glad that you are doing well and hope you continue to do so in the new year.

Take care, wishing you the best in 2024.