Marrowforums

Marrowforums (http://forums.marrowforums.org/index.php)
-   Clinical Trials (http://forums.marrowforums.org/forumdisplay.php?f=15)
-   -   Clinical Trial Fibrogen 2216 (http://forums.marrowforums.org/showthread.php?t=40)

seniorrico Sun Sep 24, 2006 02:39 PM

Clinical Trial Fibrogen 2216
 
Last summer I participated in a clinical trial at UMass on Fibrogens 2216 for 5 weeks. I did not experience a positive response with this drug but looking back maybe I should have stayed on it longer. Anyone participate in a clinical trial with this drug or any others for treatment of MDS? What were the results.
Warren Rich
RAEB dx Feb. 2006

judyjudyjudy Tue Dec 26, 2006 06:57 AM

Fibrogen trial
 
My husband, David is currently on such a trial with Dr. Raza at UMASS. He's on day 87 of a 113 day trial. He's at the maximum dose (2500 mg), feels awful, nausea, loss of appetite, sharp stomach cramps, and even greater fatigue than he normally has--but he's sticking it out, because whatever results there have been seem to come after the trial is over. He is tansfusion-dependent, every 2 weeks, that hasn't changed--yet.
Judy

seniorrico Sun Jan 28, 2007 12:48 PM

Fg2216
 
Your Dad's respnse sounds like mine. When I went to the higher does with Dr Raza I felt terrible so I opted out but my trans fusion frequency never got a whole lot better. I was 4-5 weeks then all of a sudden I went to two weeks. So I went to a Dr Voorhees at UNC Chapel Hill, NC and he did a bone biopsy and then put me on Dacogen. My results to date on Dacogen have been fantastic. If you want call me at 910-791-6745 and I will fill you in on the details.
Warren Rich
Wilmington, NC


All times are GMT -4. The time now is 04:24 AM.

Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2019 Marrowforums.org