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-   -   low hemoglobin 1 year after stem cell transplant (http://forums.marrowforums.org/showthread.php?t=6051)

Rebecca K Sun Apr 29, 2018 06:56 PM

low hemoglobin 1 year after stem cell transplant
 
I am wondering if anyone has experienced what I have and might have a creative solution. I am one year out from an otherwise very successful stem cell transplant for MDS. My sister's stem cells are fully engrafted and my WBCs and platelets are solid. I still however have low hemoglobin and I have 2-3 transfusions a month. My doc thinks my strommal cells were damaged when I had breast cancer 20 years ago (chemo caused the MDS) but she thinks they are slowly healing. We tried promacta, steroids, and immunosuppressants. Anyone else have this situation and can shed light? I would be very grateful

Rebecca

DanL Tue May 1, 2018 12:16 AM

I can't say that I had the same exact circumstances, but I had low blood counts for over a year until I got PCP about 1.5 years out and the doctor gave me about 3 shots of neupogen. Since that time, all of my counts stabilized and have been close to or above low normal.

I don't know if there is any true causality, but the timing worked that way for me. Prior to that, my HgB was hanging out around 11 or 12, WBC always between 2 and 4, and platelets below 100. I am now 4 years out, have 17.2 HgB, WBC between 4.5 and 9, and platelets around 140.

It might be worth the conversation.

Rebecca K Sun May 13, 2018 01:03 PM

wow
 
Thank you DAn.. what I would give for your hemoglobin. Mine is between 7.0 and 8.0... what is PCP?

quantpsyc Tue Jun 11, 2019 07:25 PM

Rebecca, PCP is Pneumocystis pneumonia.


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