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Johnc Thu Feb 21, 2019 08:38 AM

Hi All

After two weeks of blood tests and a bone marrow biopsy last week - I finally received the results back this morning from my specialist physician - unfortunately I have been diagnosed with MDS. So my journey of discovery and treatment begins.

In my search to better understand my condition I came across this forum and am grateful for the experiences and knowledge one finds on this forum.

Well that's it for now...


David M Fri Feb 22, 2019 09:00 AM

Hello Johnc,

I am sorry to hear of your diagnosis, but you have come to a good and helpful place (i.e. this forum)! I wish you well on your journey.

David M

DanL Mon Feb 25, 2019 12:26 AM

Hi John,

I am sorry for the diagnosis, but glad you found the marrowforums. This site has been a great source of information and support over the 9 years that I have been dealing with MDS, transplant, and the various side effects of treatment.

Cheryl C Sun Mar 3, 2019 06:20 PM

Hi John

Welcome! You're right - this is a great place to come for information and encouragement. I've been hanging around for 7 years now.

Do you know what type of MDS you have?

Eric 53 Sat Mar 9, 2019 06:40 PM

Good luck John. I also just got here.
I'm 66 years old and was diagnosed with low-risk MDS back in 2010.

Not sure what your particulars are age-wise and disease-wise. It really does make a difference. Some people go into drug therapy right away and are looking for bone marrow transplants, while others do the watching and waiting, getting regular blood tests done to monitor the progression of the disease.

Good luck.

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