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shadowii Sat Aug 10, 2019 01:24 PM

back pain
If its not one thing its another.
Now dad has some bad back pain, particularly in his lower back but he says it moves up his spine and into his groin.

Anyone have this problem because looking up the symptoms lead me to avascular necrosis and I really hope its not that

he got an mri so we will know Monday

I saw you have that condition DanL did it start three months after starting steroids

DanL Mon Aug 12, 2019 01:42 AM


I developed AVN after about 1.5 months of taking high dose steroids. It took out both of my hips and my right shoulder. I also developed cataracts from steroids. I am very sensitive to prednisone, probably more than most.

The pain of AVN usually falls into the joints, not so much up and down the spine, although I guess that is possible. For me the pain was most obvious when transferring from a seated position to standing or vice-versa. It was alleviated initially by walking and continuously moving.

The pain from AVN of the hips goes along the upper ridge of the pelvis on the back , and is also present along the pelvis along the inner thigh up to the hip bone.

I do hope that your father is not experiencing AVN as it is not fun, and may require some waiting until blood counts, especially whites and platelets are pretty normal, although my first surgery was done with about 80k platelets with no problems, and i experienced very good pain relief within about 1 week. It took a while to get full range of motion, but it wasn't as bad as one might think.


Meri T. Mon Aug 12, 2019 02:23 AM

Hello Shadowii,

I experienced back pain around 2 months after transplant. CT showed nothing on the spine, and the doctor really didnot know why my lower spine was in so much pain.

The back pain lasted for 2 weeks and subsided, reason unknown. My back is fine now.

I hope your Father falls into this kind, and the pain will subside.

shadowii Mon Aug 12, 2019 04:47 PM

welp its not necrosis, dad has a minor slipped disc that's not impinging on the nerve.

it says something that im happy he has A bone problem as long as its a more common, treatable, and not the big one (they are basically prescribing him physical therapy).

I just don't know sometimes how to give them comfort when everything is a thing

shadowii Thu Aug 29, 2019 01:43 PM

Welp the pain is not related to his spine.

the bad news though is that it might be related to his kidney

anyone have any kidney stories to share

DanL Fri Aug 30, 2019 02:26 AM

Unfortunately, drugs are processed through the kidneys or liver, which can cause kidney and flank pain. The best food is to either quit the drugs. Not always an option, and to stay exceptionally hydrated, which while inconvenient, is effective for many, check with the doctor to see if some of the drugs that are harder on the kidneys can be reduced or changed out, or maybe even add some Lasix, to help move the fluids more readily.


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