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-   -   Raise awareness on MDS and support research to help our loved ones affected (http://forums.marrowforums.org/showthread.php?t=5323)

Wife of Diver Down Mon Feb 29, 2016 10:57 PM

Raise awareness on MDS and support research to help our loved ones affected
 
Since my husband died my daughter has become more involved with raising awareness about this devastating disease. Too many people have not heard of MDS and think it is multiple sclerosis or muscular dystrophy. We need to get the word out so we can find better treatments. She has launched an awareness and fundraising campaign through the MDS foundation. Each tweet #stoptheMaDnesS will donate 5 dollars toward MDS research. See the link below and share withe all you can

http://www.mds-foundation.org/stopthemadness/

Neil Cuadra Mon Feb 29, 2016 11:33 PM

It's wonderful of your family to organize this campaign.

And quite appropriate that you posted it on Rare Disease Day.

Wife of Diver Down Tue Mar 1, 2016 12:13 PM

Help those we love who have MDS
 
Yes- ‪#‎stoptheMaDnesS‬ campaign – was intentionally launched on Rare Disease Day and will run through March

For every tweet hashtagging #stoptheMaDnesS, the pharmaceutical partner Celgene will donate $5 to the MDS Foundation for research.

Help us make the voice of this disease heard!

If you don’t have a twitter account your children probably do

Click or forward the link- http://www.mds-foundation.org/stopthemadness/

Music "One Day At A Time" by Janna Pelle -
https://soundcloud.com/jannapellemus...ay-at-a-time-1

PaulS Tue Mar 1, 2016 02:34 PM

Hi - I'm sorry for your loss -
Thank you and especially your daughter of organizing this - Now I'll have to figure out twitter.

Best wishes,

Paul


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