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-   -   MDS platelets (http://forums.marrowforums.org/showthread.php?t=4302)

Alvin Tue Jul 8, 2014 01:26 PM

MDS platelets
 
I am 81 yrs. with MDS for 2 yrs..
I have been getting 2 units of platelets every 9/10 days for that time, 2 months ago I started 3 drops of Cannabidiol per day.
I have now gone 35 days without the need for a platelet trans.
Cannabidiol is non hallucinogenic. Our idiotic Government will not take if off its drug designation.

Neil Cuadra Tue Jul 8, 2014 01:36 PM

A connection between cannabidiol and platelets has been reported before, but I don't think it's been studied extensively.

sbk007 Tue Jul 8, 2014 04:07 PM

1. It is legal and can be bought on Amazon & eBay.
2. There are no studies I could find that supports platelet response.
3. I would like to ask Alvin what his platelet count was pre-ingestion and post.
4. Unfortunately it will not give you a buzz..SO if it doesn't work you can't even get high.

Alvin Tue Jul 8, 2014 05:34 PM

Cannabidiol
 
I get trans. with platelets when the count gets to 8.
Since the CBD, plts. have been at a constant 9/10
Low but manageable.

sbk007 Tue Jul 8, 2014 05:50 PM

Alvin, What brand are you using? and the strength?
Thanks

Alvin Wed Oct 15, 2014 11:01 AM

update
 
Quote:

Originally Posted by Alvin (Post 34375)
I am 81 yrs. with MDS for 2 yrs..
I have been getting 2 units of platelets every 9/10 days for that time, 2 months ago I started 3 drops of Cannabidiol per day.
I have now gone 35 days without the need for a platelet trans.
Cannabidiol is non hallucinogenic. Our idiotic Government will not take if off its drug designation.


Oct. 15
I have now gone 76 days before I needed two units of platelets.
My hemoglobin gained 5%. First gain in well over 2 yrs.

Alvin Tue Oct 21, 2014 11:01 AM

update
 
I can't seem to get this posted.
After 6 mo. taking cannabidiol my last period between platelets trans. was 76 days.
Hemoglobin about 30 days.
Alvin

bailie Tue Oct 21, 2014 12:04 PM

Alvin, congratulations on your situation. What is your MDS diagnosis? Are all of your blood counts improving?

Alvin Fri Oct 24, 2014 07:28 PM

My blood counts are not improving but are staying steady for longer, therefore longer periods trans free. This a big change from 6 mo. ago.
Alvin

Caregive Sat Oct 25, 2014 12:06 AM

Most interesting. I'll do some reading on that. I hope it gets studied further for the benefit of all.

Alvin Wed Oct 21, 2015 02:49 PM

MDS and Cannabidiol
 
Today is the 365th day since I have had to get a platelet tx.
I spent 2 years getting these tx every 9/10 days.
For a about 18 months I have been taking 2 rice grain sized drops of cannabidiol.
There is no scientific proof of this result but something very dramatic has happened to my condition.
Alvin

bailie Wed Oct 21, 2015 03:17 PM

What kind of MDS diagnosis do you have? What is your blast count?

Alvin Wed Oct 21, 2015 04:00 PM

It has been so long since I was diagnosed that I don't have that info.
I will contact my hematologist and see if I can get that info.
Alvin

Cheryl C Wed Oct 21, 2015 07:10 PM

A study into the effectiveness of Cannabidiol for epilepsy in children has just been approved by the New South Wales (Australia) government. There has also been some study into its effectiveness for Alzheimers (in mice). There's also been a lot of publicity recently about the use of Cannabidiol as pain relief for terminal cancer patients. Haven't heard anything public about platelets yet...

bailie Wed Oct 21, 2015 07:48 PM

Alvin, is cannabidiol the only "medication" you are on? I don't think you have mentioned anything else.

Alvin Thu Oct 22, 2015 02:55 PM

i am not on any medication except Lipitor ( cholesterol lowering ).
Nothing for my MDS.
Alvin

Marlene Thu Oct 22, 2015 05:09 PM

That is good news Alvin. Hope it continues.

bailie Thu Oct 22, 2015 06:51 PM

Alvin, Have you ever been on any medication for MDS?

Alvin Thu Oct 22, 2015 07:07 PM

Never had any meds for MDS.
Did a session with EXJADE for iron chelation.
Alvin


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