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-   -   Shoulder pain (http://forums.marrowforums.org/showthread.php?t=6321)

shadowii Tue Apr 2, 2019 08:40 AM

Shoulder pain
 
My father just had a haplocord transplant a week ago for mds.

He has been doing very well but for the last three days he's been having shoulder pain.

Tests have shown no infection, no clot and no bone problems.
Now he claims the medication Made it worse.

Does anyone have any idea whats happening with him?

shadowii Thu Apr 4, 2019 09:58 AM

ok after many tests, they know its not clot, bone or tissue damage or any sort of infection (they did mri, sonogram, etc)
they think its related to the line they put in him
has anyone recalled a situation like this (they are considering giving him oxycontin)

Hopeful Fri Apr 5, 2019 01:13 AM

Quote:

Originally Posted by shadowii (Post 53097)
ok after many tests, they know its not clot, bone or tissue damage or any sort of infection (they did mri, sonogram, etc)
they think its related to the line they put in him
has anyone recalled a situation like this (they are considering giving him oxycontin)


I would be really cautious with starting him on oxy, given how addictive it can be. If they suspect his pain may be nerve related, I would talk to his doctors about trying Botox injections to treat it. I am not an expert but have heard of people that had success with this.

shadowii Fri Apr 5, 2019 10:19 AM

Quote:

Originally Posted by Hopeful (Post 53102)
I would be really cautious with starting him on oxy, given how addictive it can be. If they suspect his pain may be nerve related, I would talk to his doctors about trying Botox injections to treat it. I am not an expert but have heard of people that had success with this.

Whoops a little late to tell me that now, heheh, he had a good night sleep so im sure he's happy with it (they gave him sleep meds too)

Also I've learned the pain centers in his shoulder but can spread to back and arms when it gets bad.

Anyway he's day 9 post transplant so as im sure people can imagine he's pretty wrecked regardless, were just waiting impatiantly for signs engraftment is starting

Marlene Fri Apr 5, 2019 12:38 PM

If it is the line and continues to cause pain, you may want to discuss replacing and relocating it. It shouldn't cause that much pain.


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