One year Post Mini MUD SCT & All is Normal
 

Hi, I just completed my one year check up with the Fred Hutchinson Long Term Followup team and am so happy to report my BMB and lab results are normal. The SAA is definitely gone, I have 100% donor chimerism, 30-40% cellularity & normal cells & maturation in all 3 lines. So my mini MUD SCT worked. Time to celebrate!!

I'm still on a small dose of Cyclosporine (50mg 2xday) & have stopped the taper for now because I developed some moderate oral GVHD 2 weeks ago, but its such a low dose & hopefully I can restart the taper soon. (I'm also still doing monthly phlebotomies).

15 months ago, when I had to make a decision about moving forward with my MUD transplant after the Horse ATG failed to work for me, I really struggled with my decision. I had to switch off my fears and move past my worry about the high risks associated with my age. I wanted to enter my transplant confident and with positive energy. Today I feel very thankful that I was fortunate to have a perfect donor, that my husband was an amazing caregiver, and I had an excellent medical team. I will never take any of these gifts for granted, nor all the research which has made it possible to manage AA so much more successfully than in the past.

For those struggling with AA, hang in there, be your own advocate & if you're able, find a medical team who knows how to manage & treat this crazy disease.

Cheers, Dena

Congratulations Dena! Best wishes for your healthy future!
God Bless,
Sally

Dena,

Congrats on the great results!!

May your GVHD be a distant memory soon...

Good luck, and God Bless...

So happy to hear your levels are normal! Congrats!

Dena congrats! Such great news!

Dena,

What wonderful news! We all here celebrate your triumphs!

You have been and still are such an inspiration to everyone.

Thanks for your kind words to everyone and showing us all how it is done!

Deb

Congrats Dena. So glad you are doing well.

Congratulations and Happy Rebirthday!

Thank you everyone. I feel so blessed to have found Marrowforums. You all have helped me so much throughout this crazy journey we all share.

Awesome, congrats, Dena! That's great to hear!