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-   -   Feels like starting over (http://forums.marrowforums.org/showthread.php?t=3407)

Heather8773 Mon Jan 21, 2013 11:32 PM

Feels like starting over
 
Well we met w a specialist today.

He thinks my husband has been misdx w PNH and has AA w a PNH clone?
He is getting 3 more units of RBC and a new bmb this week.
He thinks my husband should stop Solaris (I think until we have new bmb results he will continue Solaris)
He is already talking bmt and we said we would like to explore ATG first.
My head is spinning... I don't know where to start.
Advise is really appreciated.


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