Hello
Just looking for someone in my area of Pennsylvania that has aplastic anemia with PNH...Looks like I am on my own..Nobody here...:(
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Yvonne,
Try posting in the forums at pnhdisease.org. There are a lot more PNH patients there than here, and AA+PNH is common. There are also a couple of Facebook groups for PNH. At pnhdisease.org -> PNH Forums -> PNH Daily Posts, you'll see a thread entitled "Where is everybody?" and in that tread are links to the Facebook groups. |
Thanks
Thanks for the information :)
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