New just to say hello
 

Hello All,

I'm a 64 year old caucasian male, diagnosed with MDS about 4 years ago. I have had anemia since 1999 but it wasn't until 2008 that a local Oncologist figured out what I had.

My disease has been described as moderate by the oncologist I see. My hgbn has dropped as low as 8.8 but has remained above 11.5 for a while.

I have diagnosed issues with number, size, shape and function in almost all blood type cells...part of MDS I guess. The oncologist I see also thinks I might possibly have mild Gilbert's syndrome as well.

My symptoms have included, fatigue, shortness of breath, dizziness, heart palpatations and frequent skin/nail bed infections. I seem to react to pain meds of any kind and can't drink caffinated coffee or will get sick(chest pressure; nausea).

In my past career, I have worked with heavy duty solvents and other chemicals. I've also had some radiation scans for intenstinal issues and have received heavy doses of intravenous antibiotics in my past.

I have been reading this forum for some time but this is the first time I have posted.

My hope is that by reading what others are going through, that I will learn more about this disease and mostly, how to cope with it.

It's been good to read what some of you have posted and I'm grateful for this forum.

hello guitpic...
Welcome on this forum.
good to hear that you're fine with your mds since a long time. What's your mds's type?
béné

bene,

Thanks for the reply. I'm not sure about my type of MDS but will do some checking.

That said, I don't even know how I would go about finding out what type of MDS I have?

Tx