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Hi Vera,
Yeah, I know what you mean - I've been googling all things related to MDS since my diagnosis. But, there still are problems, for me, in understanding the bone marrow biopsy and aspirate reports. First there is the nomenclature and then there is the difference in format between the two different labs that performed the biopsies. Fortunately, we see hematologists who can assist in interpretation of these reports. Seems to me the pathologists make no attempt to put the cookies on the lower shelves, so to speak - then again why should they since the report is for the doctor.
I just love the designations CD45 neg, CD45 dim, CD45 bright, such and such stain, gene expression - help! I'm just a struggling layman. Oh sure, I can and do look up these terms, but it's still a terribly hard effort to attempt to put it all together.
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Bill F, 74, MDS RA '05, procrit, aranesp, revlimid, no help; 87 transfusions, 4 cycles dacogen, then transfusion free ~2yrs, 4% blasts
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