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Day +9 Friday
Hard to believe that I have been here 18 days tomorrow. My counts WBC ,03, No anc, HCT26.4, Platelets 20. I am on my second red blood transfusion as we speak I had platelets done yesterday and might need them tomorrow. I have a non itchy red rash on my legs that no one knows what it is. The worse part of my day was my mucositis. I had trouble breathing and i got a shot of dexamethasone, it really broke up the mucous. Ruth and Laura they offered me a diladid pump but it made me sick and did nothing for the pain.What works the best for me is norco (low Tylenol vicadin) and oxicodon, I can't swallow that too well but the pain relief is amazing. I did settle for a fentsnyl pump.It is another morphine derivative! The docs are pleased with my progress. Thank you for your encouragement! I have had three neuprogen shots.
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Vera, 56 yo female Dx RAEB II 10-08, 11-12% blasts. Normal chromosomes. Started Vidaza 10-08. . Improved Dx 3-09 MDS RA 2% blasts 8 cycles Vidaza! SCT transplant 7-1-09 at UCSF. Normal bone marrow and MDS free as of 10-09 
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Last edited by Vera W : Sat Jul 11, 2009 at 01:23 AM.
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