Quote:
Originally Posted by Hopeful
Hi JEZ,
Did your kidneys recover after stopping Neoral? Are your creatine and GFR again at a safe level? If so, I wonder if you can continue Neoral in parallel with a much lower dosage. I've read that some people need as little as 25 mg bid to keep from relapsing. Of course, your kidneys must be recovered to try this experiment!
Also, I'd check to see if your doctor will let you monitor your chemistry panel more frequently while changing medicines or dosages so that you can catch the effects earlier.
I hope it is just a temporary slide while your body adjusts to the new meds. Hang in there!
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Yes, my creatinine dropped to 1.2 and GFR went up to 43, which still is not fully recovered but much better. I like the idea of trying a "smidge" of cyclosporine with the Imuran....
JEZ
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JEZ, 50s, diagnosed AA Dec 2006, ATG one time, serum sickness resolved / took cyclosporine (Neoral) with delayed response but now with good labs/ recent kidney toxicity, so off of cyclosporine now and trying generic Imuran
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