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I have found out that it is best, if possible, to go to a doctor that teaches as well as seeing patients. My first hematologist worked mostly with oncology patients and didn't really know the nitty gritty of working with the cyclosporine.
I was getting good care, but now I go to a professor of hematology at the local medical school as well as Dr. Maciejewski at the Cleveland Clinic. They have really helped with working with the meds.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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