Hopeful,
Thank you so much for your reply and for taking the time to explain all that to me. It was very helpful.
My mom is 79 years old. Although she was officially diagnosed with MDS in April of this year, she has had the symptoms of MDS since earlier last year. she had episodes of bleeding from her nose. She was anemic (hg, 6)and required some ten transfusions. Earlier this year, the doctor put her on epoetin shots to stimulate her BM to produce red blood cells. She started with three shots a week, down to two a week and then one a week. Now she takes one shot every two weeks. Thankfully she is responding very well to the treatment. Her Hg is now 12. Her platelets counts, however, is low. She is doing really good and planning on coming to visit me her in California at the end of September. Her Dr. said she is good to travel.
I signed up myself to attend the Patient and family one day conference in September and I have been in contact with the AA&MDSIF. I live in the Los Angeles area.
I wish you too the best. Young people live forever with MDS and with the new drugs they are making these days, there is so much hope in coming up with cure of this disease.
I am hopeful too
Take care,
Mona