Hi Mona,
I was dx May 2006 and have been asymptomatic except these joint bleedings and neutropenic fever Sept 2007. You know I try to do everything that can make me better and avoid everything that can make me more ill.
This means that I don't eat red meat since that will
increase iron (I have now received 98 units of blood), drink milk, tea (not green tea), whole grain products that can decrease iron absoption.
I avoid everything on the warning list for patients with
platelets disorders for examle most pain killers, a lot of food like onion, garlic, chocolate, many fruits...
Then I am afraid of
infected people and infected food so I travel in my own car, meet my friends outdoors if possible otherwise in big restaurants or similar places, take care of my grand childern outdoors, only eat recently cooked food or fruits that I have peeled myself.
Neil asked me to write my personal profile so you can read about my treatment. I have only accepted supportive treatment so far.
Hope your mother continues to improve
!
Kind regards
Birgitta-A