Hi Michelle, I know what you are going thru. I have a 12 year old son and I was diagnosed in July 09. We choose to tell him everything so far. I don't know if that is the right decision or not. We are not looking at it as dying soon or anything. My doctor is very optimistic with prognosis. I am in the "wait and watch" category, which I HATE! I have been having pain in my left side since late July and they are puzzled by that. I have an enlarged spleen but as of last appointment 2 wks ago, he says 99 percent sure its not the spleen. (I think it is) I go next wk to a surgeon for a new set of eyes on the side issue. How are your numbers? Mine are staying stable at this time. Please feel free to email me privately if you wish........fspray@fpunet.com.
Best Wishes to you and everyone with MDS.
