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About the Prednisone, did it make anyone sick? Like burning in the hands and sore joints? I had just bad serum sickness i wasn't sure if the burning was from the steriods or lingering serum sickness. I was also put on high blood pressure meds and about 3 weeks later I was blacking out and feeling like crap. I had to get admitted to the hosp because my blood pressure was back to normal and the meds were dropping it down. I completely understand everyones frustration with the processes there are. Especially the wait and see response.
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Lee-39 years old-AA,PNH and chromosome 12 disorder-1 rabbit ATG treatment and 1 horse ATG treatment. Getting my bone marrow transplant on November 23, 2010!!!! Counts as of 12-27-10 HGB 12.0, WBC 7.8, platelets 80, Neut# 3.9(12-24-10)!!! Just a touch of GVHD but back home!
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