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Are your other medicines for another autoimmune condition and are they also immuno-supressants?
If other than red cells are effected then I don't think it's PRCA. But it sounds like you have other issues that could be contributing to this.
Regarding the retic count. You need to look at the ARETIC, absolute reticulocyte count to see what you are really producing. You can have a normal retic % but it needs to be adjusted for the anemia. The ARETIC is better indicator. Usually, a high normal/above normal is seen when your body is producing lots of red cell when your body is recovering from blood loss or after a treatments that suppress bone marrow (as long as the BM is working properly)
If you have multiple autoimmune issues and your doc wants to treat your bone marrow problem, then I would look into High Dose Cytoxan at Johns Hopkins. It is and has been used for other autoimmune diseases other than SAA and may be able to treat your other issues as well.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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