Quote:
Originally Posted by edo288
Hi run4peach1:
I am taking Vidaza. I'm starting my second 28-day cycle next monday. Just got a two-unit transfusion today (the beginning of the 4th week). The staff at oncology say this is normal, i.e., a significant drop in blood counts, for the typically three to six 28-day cycles. Here are my current stats: hemoglobin down from 9.3 to 8.5g/dL; Absolute Neutrophil Count (ANC) down from 800 to 500. After three to six cycles, some patients are transfusion free.
See my site at Vidaza Chronicles |
HELLO,
I FINISHED THE FIRST SEVEN DAY CYCLE OF VIDASA ON OCT. 27 WITH LITTLE OR NO SIDE AFFECTS.
I RECEIVED AN INJECTION OF NEULASTA (SUPPOSED TO IMROVE MY WHITE BLOOD COUNT) AT THE CONLUSION OF THE VIDASA TREATMENTS. (MY WBC JUMPED FROM AN AVERAGE OF 2.2 TO 15.2 YESTERDAY.) IT COULD CAUSE SOME BONE PAIN BUT DON'T THINK IT DID ON ME. HOWEVER, MY LOWER LEG MUSCLES BEGAN TO BE SORE TO THE POINT I HAD A HARD TIME BEING COMFORTABLE, AND I HAD A HARD TIME SLEEPING MORE THAN THREE HOURS AT A TIME AND THIS CONTINUES UNTIL TODAY BUT WITH SOME HOPE FOR RELIEF. I RECEIVED A NEURONTIN PRESCRIPTION YESTERDAY AND THINK THIS WILL PROVIDE SOME RELIEF. THE BAD NEWS IT MAKE YOU DROSSY BUT THAT IS BETTER THAN THE LEG PAIN. I HAVE TAKEN TWO PILLS SO IT IS TOO SOON TO TELL IF THIS IS A GOOD THING.
I WAS DIAGNOSED WITH A MILD CASE OF PERIPHERAL NEUROPATHY IN 2000 AND WE ARE WONDERING IF THE VIDAZA SOME HOW IS EFFECTING THE NEUROPATHY. WE WILL SEE HOW THE NEURONTIN DOES IN PROVIDING SOME RELIEF.
MY RBC AVERAGES AROUND 3.7 BUT SLIPPED A LITTLE YESTERDAY DOWN TO 3.6. WHAT CAUSED MY DOC TO BE CONCERNED WAS MY PLATELETS DROPPED FROM 67K FOR A WHILE TO 44K LAST WEEK AND DOWN TO 11K YESTERDAY. I GO IN FOR MY FIRST PLATELET TRANSFUSION TODAY. I VISIT MY DOC AGAIN ON THURSDAY TO REVIEW MY BLOOD COUNTS.
I HAVE ALSO BEEN RECEIVING AN ARANEST SHOT EACH WEEK HOPING TO BUILD UP MY RED BLOOD CELL COUNT. SO FAR IT IS STAYING ABOUT THE SAME.
ANOTHER RESULT OF ALL THIS IS I HAVE SORES ON MY TONGUE. MY DOC SAYS THIS IS A RESULT OF MY LOW RCB. I GARGLE FREQUENTLY WITH SALT AND BAKING SODA.
THAT IS A BRIEF DESCRIPTION OF MY CONDITION. IT PROBABLY DOESN'T TRACK WITH ANYONE ELSE BUT IT SHOWS HOW UNIQUE WE ALL ARE.