Hi,
My retic count at diagnosis was 48 on a scale of 25 - 100, but it should have been high due to the anemia - in a healthy person at least.
My retic count now on this treatment is 4. It's absolute count not % for both.
I took 450 mg of cyclo a day, I was at 89 kgs for awhile.
My alternatives for some reason all involve prednisone, which I will not take. My dad took it for years and years and I am not going there.
I've no idea if I was tested for PNH so I guess I haven't been. I only had the 1 BMB, in which they couldn't get any aspirate and couldn't tell the immunophenotype on the cells they did get (she "assumes" they are suppressor T cells).
I don't feel like doing ATG or chemo on an assumption. I can't even figure out if ATG would be a permanent thing. I asked, but I never get much of a definitive answer. I would also like to try less harmful treatments first. I feel much better but my blood counts have not improved.
I am a 45 yr old female.
Deb
|