|
Hi,
Thanks for the feedback about IVIG - maybe I will get a break from the transfusion routine for awhile.
She doesn't explain my low WBC. In fact, she doesn't explain much. I have an appt with my excellent family dr of 20 years on Mar 8 to discuss my many frustrations and see if a 2nd opinion is warranted. The problem is it might take awhile to get in, and I'm getting impatient to do something.
Yes, I know these treatments have side effects, that's why I am trying to start with less drastic treatments first.
She basically does clinics 2x a week. There are something like 10 rooms and the clinic is packed. Sometimes she is double or even triple booked - it's not just her, there are other doctrs there and it's all the same. She gets to each person in turn. There is not a huge amount of time to talk, and then you don't always know how to ask the right questions, or even what the right questions are. Even with months and months of research I am finding it is not easy to ask the right questions.
Today my HGB was 81, and there's a huge amount of stress at work.
Deb
|