Thread: MDS?
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Old Tue Feb 9, 2010, 09:53 PM
Zoe's Life Zoe's Life is offline
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Join Date: May 2007
Location: Logan, Ohio
Posts: 127
Marais,

Don't start panicking yet, though I know it can be hard. MDS life expectancies on the internet are dated, and are generally cases without treatment. So many new treatments have come about in recent years. You don't say how old you are, but age is a factor also. Do you know what type of MDS you have, do you have excess blasts? That also makes a difference in prognosis.

At any rate, there are a lot of folks here who have lived, and lived well with MDS for far longer than 3 years. I was diagnosed 3 years ago and am working on starting my own counseling business.

This is a great place to be encouraged and meet MDS patients who have been around the block many, many times.

Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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