I attended a webinar put on by the Aplastic Anemia and MDS International Foundation "MDS: Whot Gets It and How is it Diagnosed" and turns out I fall into a very small category of autoimmune driven MDS.
- female
- < 55 years old
- hypocellular marrow
- other signs of autoimmune disease (for me Raynauds) + family history
I have suspected this for a long time and can't wait to share this information with my doctor. I had all kinds of testing done for autoimmune and nothing showed up, but I just can't help feeling that something is being missed. Just hope I'm on the right track because ATG and cycolsporine could help my counts. Hope this information can be helpful to others.
Jill
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Jill, 58 y/o female dx with MDS-U June 2008, IPSS:Int. 2. Allogeneic SCT May 25, 2010. Relapsed January 2011. Started Vidaza (azacitadine) Feb. 2011; Currently on cycle #58
, IV, 5-days every six weeks. WBC 5.3, Hgb 13.0, PLT 110 (2/16/18)